The Annual Springtime Blues; Time to Boost Thyroid Medicine

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REPOST FROM FEB 2011

Here it is March 2012 and I am thinking "Wow, I've been feeling kind of blue lately." It's the yearly seasonal thyroid drop, which always happens around early March and goes until May. Late winter through early spring can be hard for those of us with hypothyroidism. Even when we are on good thyroid medicine! It reminded me of my blog post from last year on this exact topic. Sheesh, even I have a hard time seeing my own symptoms! Read on.... xxxooo!! Lizzy

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Hi my friends, this time of year is always tough for me. The days are getting longer, there is more light and I feel like I should be feeling great. But sure enough, I feel the low-grade depression sneaking up on me again. It usually sets in just before the forsythia bloom (so early March here in New England). When I finally got treatment for hypothyroidism I learned this depression is actually low thyroid! 

Apparently thyroid function drops in the late winter/early spring months which creates a low-grade depression for many of us. It feels like SAD (seasonal affective disorder), general depression, or just a heaviness. I know it's not SAD because I still have it even when I get plenty of sunlight. And I know it's not traditional depression because it lasts only a few months, and it's always around this time of year. 

So this is a reminder... to help get through the winter blues many of us need to increase our thyroid medicine about 1/4 pill just for a few months. (I might add, who wants to take anti-depressants and gain weight?!) For me the depression starts around now and sometimes lasts through May. When I start to feel light and buoyant again I know I can ease back to my normal dose of thyroid medicine.

This year I am taking the natural desiccated thyroid compound from Collier's Pharmacy and still have great results all around. But I think I still need the extra 1/4 pill (15mg) boost. I hope this helps you too!

xxoo

Lizzy

Latest Update on My Medicine for Hypothyroid and Adrenal Fatigue

Hi my friends,

It's been a while since I've posted about my medicine, and it's been an interesting year! So I wanted to share what I've learned. First, I want to say wow - it's all a big experiment! And that's tough sometimes because I want the answer right now. But the only way to learn is try, test, observe and somehow be patient along the way. So my dear friends, keep at it and you will find answers too. Here is my medicine and general update...

Update on Thyroid Medicine

For a year I have been on the Thyroid compound prescription I special order from Collier's Pharmacy (details below) in Arkansas. I continue to love it. On the new compound medicine, I take 180mgs day which seems like the right dose for me. On Naturthroid, when I raised above 130mgs I had super freaky hyper and hypo symtpoms. Yet on the compound I can take 180mg beautifully. Weird, isn't it? So I am super happy to report feeling great now though on the compound. We affectionality call it "The Miss Lizzy Compound" -- you can ask for it by name at Colliers. Neat. 

Update on Hydrocortisone

The other super big change...I weaned off Hydrocortisone! This was a huge step. I started Hydrocortisone three years ago to help with low cortisol and adrenal fatigue. And Hydrocortisone definitely helped me. But I was always a little worried that the Hydrocortisone was causing some weight gain, and perhaps had something to do with hair loss, though I wasn't totally sure. This summer I decided it was time to try weaning off Hydrocortisone. Here is what I did:

1. On STTM Janie felt she had avoided adrenal fatigue because of the high doses of Vitamin C she took daily. So I increased my Vitamin C to 2k mgs a day along with 1k mg Bioflavonoid (per Dr. Wilson's suggestion). And btw -- chewable vitamins really make it much more fun!
2. I started the process of decreasing my Hydrocortisone by 2.5mgs a week. 
3. If I was stressed during the process, I would hold the dose, and then continue when I felt ready. The idea was to take care of my body and not cause shock.
4. If had I felt any adrenal fatigue symptoms, I would have stayed on the Hydrocortisone but luckily it seems my adrenals are really well healed now! YAY!!!

It took about 3 months to fully wean off the Hydrocortisone (long time, I know!). And I happy to report, I feel great. It was definitely worth it for me to be on the Hydrocortisone but it was time to try without. It's been two full months, and so far I seem to be keeping my weight down with greater easily. Over the coming months I will be observing weight gain/loss and hair volume/regrowth to see if the Hydrocortisone might have be related. And of course I will share what I learn!

xxoo

Lizzy

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Here is the info for Collier's. The pharmacist Rodney at Colliers is SO awesome. He gave us his direct phone extension for ordering the compound (479) 935-4336. Ask for "The Miss Lizzy Compound" and he will hook you up. (A doctor's prescription is of course needed and he can explain what to do.) 

Get a Buddy!

Hi friends,

I have an idea to share. I think it's big.  

Here is what I've noticed... all this hypothyroid stuff is overwhelming! There is so much to learn. We have low energy, difficulty coping with everyday tasks and have foggy thinking. So simple things for other people, like calling a doctor, ordering labs, learning about medicine, etc... is totally overwhelming for us hypothyroid peeps. How can we possibly find our way to treatment alone? 

That's when I realized: We need to Get a Buddy to help us through! It's one small thing that will hopefully change everything.

Here's what to do. Find someone you trust (who won't nag or judge) and ask them to be your support buddy. You might fear it's an imposition but it's really not. Helping you on the road to good health helps everyone in your world. So a good friend, mom, sister or coworker may be happy to step up.

Ask your buddy to read about hypothyroidism (like my worksheet and symptoms list, or Stop the Thyroid Madness). Send them this blog post. They can do the simple tasks that may be overwhelming for you like:

• Finding a good doctor 
• Get referrals if needed
• Make the doctor's appointment for you
• Go with you to the doctor if it will help you
• Get you setup to track your body temperature 
• Help you do the symptom checklist for thyroid and adrenals
• Help you figure out if you might also have adrenal fatigue
• Talk with your doctor about what lab work to order 
• Help you understand your lab work
• Understand treatment options with natural desiccated thyroid medicine 

Do you like this idea? Are you feeling a huge sigh of relief? I hope so! So find a buddy today and be okay with asking for help. Trust me, we all need it! And when you feel better you can help someone else.

xxxo

Lizzy

Losing Hope with Naturthroid, Venturing into Compounds and Canada

Hi Friends!

It's been ages since my last post. While I've been a totally bad blogger, to my credit I've collected lots of good info to share. The big news: I've been experimenting with desiccated thyroid medicine! After the Armour reformulation fiasco two years ago, and then the Naturthroid reformulation about six months ago I've gone renegade and decided I needed to find stable medicine. 

I took the advice of many of the great ladies on the Stop the Thyroid Madness and the Yahoo Thyroid Group and decided to try having my medicine made by a compound pharmacy. Why go with a compound? Well, it's all in the filler.  When Armour and Naturthroid reformulated, people claim the new cellulose filler was the root of all evil. I don't really understand why but I definitely found my thyroid symptoms got worse after both reformulations. Whatever the drug companies did, it was Bad (and not in a Michael Jackson way). The lesson learned: no more cellulose for me.

A Journey into Compound Pharmacies

Thyroid medicine is my life line, it has to work, and I have to know it's reliable. So that's when I decided to venture out on my own into the mysterious world of compound pharmacies. For those of you who don't know, compound pharmacies are super cool. Basically, they will custom make your medicine using the filler you want. Kind of like "Build-a-Bear" of the medicine world.  

A visitor here on the site, Kama (Hi Kama!), recommended a great compound pharmacy called Colliers Drug in Arkansas. I got on the phone with Rodney at Colliers and he was fantastic (and has a super cute southernish accent!). See contact info below. I explained that I wanted a thyroid medicine that could dissolve under my tongue (rather than capsule form which has to be swallowed). Rodney offered to make my medicine in a form called a "Troche" (or lozenge). They even sweetened it to cover the awful desiccated thyroid smell. Also I explained I wanted Vitamin C or Acidophilus as a filler (suggested by STTM) instead of cellulose, which Rodney was totally happy to accommodate.  It's a great little pill. I'm very proud. 

Progress

Anyway, back to the important details. It's been a month on the compound thyroid medicine and, so far, my hypothyroid symptoms seem to be improving. Most importantly to all us ladies, I am finally losing the 6-7 lbs I freakishly gained for no reason after the Naturthroid reformulation. Yay! Now you would think that I would feel better right away on the compound but it took about three weeks before my body decided to like the new medicine. So a big thumbs up for the effectiveness of Colliers thyroid compound!

That's all the good stuff. Now, the downside...  the compound is waaaaaay more expensive than the Naturthroid prescription. It costs $50 for a one month supply with partial insurance coverage, zoinks! I know *sigh*. It's a lot of money. 

It's unlikely I can afford to stay on the compound, but at least I know where to get reliable medicine. Instead I've decided to try another medicine called Erfa, out of Canada, which was highly recommended by the Yahoo Thyroid group. The ladies say Erfa is "like the old Armour" and it costs about $50 for a three month supply. Now, its worth noting that switching medicine too quickly can really upset my body. My plan is to stay on the compound for another month just to make sure it works well. And then try Erfa by adding it into the daily medicine mix slowly. 

Once I have more info on Erfa I will share what I've learned. Meanwhile, if you want to try my compound give Colliers a call and ask for Rodney. 

xxoo

Lizzy

ORDERING DETAILS!

Rodney at Colliers is SO awesome. He gave us his direct phone extension for ordering the compound (479) 935-4336. Ask for the "Miss Lizzy Compound" and he will hook you up. (A doctor's prescription is of course needed.)

Update on Saturday, December 11, 2010 at 12:07PM by Lizzy

Hey Friends,

I wanted to share a follow-up observation about my compound medicine. I've been on it for another 10 days or so, and it really seems to be helping me lose weight! I feel really good too. I stepped on the scale this morning and it read "139.8" my lowest weight EVER!!  Food and exercise wise I don't think I doing anything differently. But it's too early to say for sure. 

If anyone else tries the compound from Colliers and has a good reaction please share!

xxoo

Lizzy 

Rumors about Armour Reformulation

Rumors have been circulating in the last few weeks that Armour had undergone another reformulation. (After the reformulation in early 2009 many of us had a bad reaction to the cellulose filler in the new Armour and switched to other brands.)

Yesterday I called Forrest Labs, the maker of Armour, to confirm the rumors. They said definitely, no, Armour has not been recently reformulated, nor are there any plans to reformulate! From the horses mouth, now we know.  

On the Yahoo Thyroid Group I got some great leads on getting Erfa Thyroid in Canada which closely resembles the old Armour. I plan to give it a try and will report my findings, naturally!  Old Armour, we loved you, why did you have to change on us?

xxoo

Lizzy